Hello, my name is Yvonne Foong.I was born on 5th June 1986 and raised in Subang Jaya,
Malaysia.I was later diagnosed with Neurofibromatosis(NF) at age 16.
What is Neurofibromatosis(NF)?
Neurofibromatosis(NF) encompasses a set of distinct genetic disorders that cause
tumors to grow along various types of nerves and, in addition, can affect the development of non-nervous tissues such as bones and skin.
Tumors in NF, are benign growths which typically develop on or just underneath
the surface of the skin but may also occur in deeper areas of the body. Neurofibromas, which are composed of tissue from the nervous system
(neuro) and fibrous tissue (fibroma), usually develop around puberty although they may appear at any age.
Myself, I belong to NF2, yes there are 2 types of NF.
My early symptoms of NF2 starts showing dysfunction of the acoustic (hearing)
nerve, which carries information about sound to the brain, and the vestibular nerve, which carries balance information to the brain.Consequently ...
hearing loss ...
ringing in the ears(tinnitus)...
and loss of balance ...
Throughout my journey championing the Neurofibromatosis cause in Malaysia,
I have been approached by numerous people facing health challenges who required medical intervention which they could not afford.
I guided these individuals on how to cope with their situations and provided
them assistance in raising their own funds. These ad hoc undertakings convinced me that a proper organization needs to be created in order
to assist and empower the entire Neurofibromatosis population in Malaysia optimally.